November has been a real testing time. In fact, the past 2 years have been about handling what life throws at us. If Adit, my husband, has to face the struggle first hand, I am the half-helpless person who tries to keep things running for him.
Health issues are not new to us. We know that the life of a type 1 diabetic can be as close to normal as possible with ideal control, but it could never be fully normal. Despite what the doctors tell you, when you have to finger-prick at least 5 times a day and get insulin shots a minimum of 3 times a day, you know that you are different and you need a different attitude about life. That’s on a good day. Bad days are like going on a roller coaster ride without nothing to hang on to.
What hits more than the disease itself is a number of factors that include psycho-social acceptance, family support, healthcare costs. Unfortunately for us, the T1D awareness in India is not great and tools that enable a type 1 diabetic to get closer to ideal control are either insanely pricey or unavailable. Families are still not sure how to handle this condition and end up ignoring it and just praying for the best, instead of getting hands on and helping the person to wade through the struggle. We do not need sympathy but actually need empathy and support which we hardly get.
Fortunately though, Adit has me and thanks to our stars, affordability for the health care that is required. Being a primary caregiver for Adit, I learnt what life as a type 1 diabetic entails. I learnt acceptance in the fact that it is not something he chose or could have avoided. It was forced on him and there is no other way than to deal with it. I learnt to help him with his blood sugar readings, plan for better targets, and cook food that suited him even if it has to be bland. I still struggle in some aspects when I am ill or totally exhausted from all the work. At such times, Adit understands. When he does not, I do.
With a toddler who does not know what her father deals with, the problems her working mother faces to keep things going without a proper support system, the struggle is real. We have got no choice but to face it head on.